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Anyone diagnosed with ET w/Calr?

Blood Cancers & Disorders | Last Active: 6 hours ago | Replies (10)

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@tmth Amazing drop in your platelet count, and in a short period time! I hope you see improvement in your symptom as well.

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Replies to "@tmth Amazing drop in your platelet count, and in a short period time! I hope you..."

@gaildj
thank you. just did blood work yesterday so that’s 4 weeks after taking 20 mg 2x per day of jakifi . now they are 112. so now we backed down to 10 mg 2x per day and do bloodwork weekly as well as 1x iv iron dose.
if it drops more he will stop jakifi .