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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: 1 day ago | Replies (912)Comment receiving replies
@brinkmanlc4440 I was diagnosed with early onset PD 17 years ago. The neurologist who diagnosed me recommended I wait until "the last ditch" before starting C/L. I tried it out 10 years ago and had a bad reaction. Tried it again last year and tolerated it better, but still didn't like how it made me feel. I have certainly progressed over the years, but so far, I prefer living without coping with complications of medication on top of an already difficult disease. My path is not for everyone, but I do like to let people know from time to time that it's possible to manage in other ways.
Replies to "@brinkmanlc4440 I was diagnosed with early onset PD 17 years ago. The neurologist who diagnosed me..."
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Welcome @jesslily! I'm glad that you found this forum. I'm sorry to hear that you have had a lot of issues with carbidopa/levodopa (C/L). Has your doctor suggested any other PD medications? Here is some information from the Cleveland Clinic website about the different medications available to treat PD: https://my.clevelandclinic.org/health/treatments/parkinsons-disease-medications.
As you are not taking medications, are you involved in physical therapy that is specifically for Parkinson's? Do you have a daily exercise program in place?
Here is some information, from the Parkinson's Foundation website, regarding exercise and Parkinson's, https://www.parkinson.org/living-with-parkinsons/treatment/exercise
I look forward to hearing from you again.