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DiscussionAnyone living with Essential Thrombocythemia with JAK2?
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@princess86
I was diagnosed in Dec 2024 and my hematologist doesn't call my ET with Jak2 cancer. Initially, he gave me option of "a cancer pill or baby aspirin". Didn't sound too serious to me. So. I chose the baby aspirin. He provided no strong explanation of risks. At the time I was seeing a vascular surgeon for blue toes and burning pain in left foot. No further treatment from him was done. He did not do tests for PAD as he said I did not have it. A year later after several doc visits with hematologist and vascular surgeon still complaining of blue toes and terrible pain in toes at night, at rest waking me up, no other treatment provided gangrene set in and all toes on left foot had to be amputated due to blood clots. At hospital it was determined I had pad (peripheral artery disease) and an occlusion was found in left leg. I had run out of baby aspirin two weeks before so they determined the amputations were unfortunately my fault. I find my case unusual. Anyone else with this kind of scenario?