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Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: 23 hours ago | Replies (484)Comment receiving replies
@petoskeyb
Same situation as you. Taking 100 synthroid for hypothyroidism for years and normal TSH results. Started HU 500 daily last June for PV. Just had thyroid tests and TSH has doubled to 7.6 since last year's thyroid test but T3 and T4 results remain the same.
Oncologist doesn't want to address this since HU working well on blood counts. So my PCP has increased synthroid to add 1/2 pill on Sat and Sun. I don't want to keep increasing synthroid because I also have osteopenia. HU has had many more unwanted side effects so I'm adding another to my list. I might decide to see an endocrinologist.
Replies to "@petoskeyb Same situation as you. Taking 100 synthroid for hypothyroidism for years and normal TSH results...."
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@mw2023 Nice to know I’m not alone!
Just got a message from my primary this week when she saw my elevated TSH asking if I’m still taking my same dosage - sigh - after all these years !
So I go in to see her for my annual exam soon and will ask her if I need to be referred to an endocrinologist. Don’t go back to the endocrinologist until next month to hear their opinion on it.
Barb