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DiscussionDoes the anxiety or fear of this prognosis ever get better?
Osteoporosis & Bone Health | Last Active: 19 hours ago | Replies (74)Comment receiving replies
Replies to "My doctor prescribed Evenity due to my severe osteoporosis. She told me that if my Dexa..."
@followheart87
Dear Follow your heart!
I send postive energy on your path to recovery and healing. But please note - EVENITY DOES NOT WORK FOR EVERYONE. I was a nonresponder - no change in Dexa and actually fractured my leg/heel ( non traumtic). I am 71, a prior yoga teacher, healthy,excellent diet and no system issues ( no cancer, tyroid, gut, inflammation, heart etc)
Make sure to have your p1NP mesasured at one month and then again 3-6-9.
If p1NP does not reach 50 at one month , there is risk of nonresponse. ( this is from JBMR 2023) It does mean to take stop medicine - just that you may not see gains as expected or none at all. My path is: 22 months tymlos/6 weeks actonel/then 11 months evenity.
Now the question is what to do... bone biopsy with tetracycline may be next....I have had all genetics tested and everything else one could imagine. My docs are baffled ... so we need creative thinking. Prayers to all for healing in what way is best for us.
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@followheart87 Would you mind sharing your DEXA scores? I've never heard of "end state osteoporosis" -- what determines that? FYI, I am 76 and my worst score is in my back at -4.1, which I know is severe.