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My doctor prescribed Evenity due to my severe osteoporosis. She told me that if my Dexa scan results showed mild or even moderate osteoporosis, her treatment decision would have been different.

I'm pretty sure Evenity isn't prescribed for someone with mild or maybe even moderate osteoporosis. You can't just "choose" to go on Evenity yourself. There are criteria for going on it. The insurance company won't approve it otherwise. I understand it's like $4000 per injection out of pocket. I don't pay this, however.

I was told I have "end stage osteoporosis". For me, it's too late for nutrition, supplements and weights. In fact, I already did all of those things through most of my life. I can't rely on "maintenance" drugs at this point because my spine is already too deteriorated. I need a bone rebuilding drug.

I understand Evenity is like a game changer. Yes, there's a risk of heart attack and stroke. I had to get a cardiac screening before going on it. I'm willing to take such a risk.

Like I said, Evenity isn't prescribed for someone with mild osteoporosis nor even moderate. There are other drugs in the pipeline. It's for someone with severe osteoporosis.

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Replies to "My doctor prescribed Evenity due to my severe osteoporosis. She told me that if my Dexa..."

@followheart87 Would you mind sharing your DEXA scores? I've never heard of "end state osteoporosis" -- what determines that? FYI, I am 76 and my worst score is in my back at -4.1, which I know is severe.

@followheart87
Dear Follow your heart!
I send postive energy on your path to recovery and healing. But please note - EVENITY DOES NOT WORK FOR EVERYONE. I was a nonresponder - no change in Dexa and actually fractured my leg/heel ( non traumtic). I am 71, a prior yoga teacher, healthy,excellent diet and no system issues ( no cancer, tyroid, gut, inflammation, heart etc)
Make sure to have your p1NP mesasured at one month and then again 3-6-9.
If p1NP does not reach 50 at one month , there is risk of nonresponse. ( this is from JBMR 2023) It does mean to take stop medicine - just that you may not see gains as expected or none at all. My path is: 22 months tymlos/6 weeks actonel/then 11 months evenity.
Now the question is what to do... bone biopsy with tetracycline may be next....I have had all genetics tested and everything else one could imagine. My docs are baffled ... so we need creative thinking. Prayers to all for healing in what way is best for us.