@colleenyoung
I am 65 and was diagnosed with Parkinson's at the age of 32. I had my DBS surgery at the Mayo Clinic in Minnesota. I'm at the point that the DBS helps somewhat but now have a lot of falls, my feet freeze up when I want to move forward and my legs don't. I am taking my carbidopa-levodopa every 3 hours now. My tremors are all the the lower extremity and it is getting more exhausting as I age. I feel so useless as I don't get much off time anymore. The Mayo Clinic says my Parkinson's was environmental as we lived on the farm with well water. My younger brother also had it but ended up committing suicide because he could no longer deal with it. My other two brothers are fine with no Parkinson's. I feel all alone with the constant dyskinesia and tremors. My husband of 23 years tries to be helpful but when I get dyskinesia he says just change your settings and I try but at this point it doesn't work as well and it makes me sad when I see the look of disappointment on his face. My Neurologist at Strong Memorial is the best but he had just told me that the disease is progressing. He really tries to keep me positive but it is getting harder with all my falls. I do use a walker now but it is hard to move through out the house. We have recently moved in with my daughter and her husband as my husband is 77 with 2 heart attacks and my Parkinson's. My daughter is now dealing with severe anxiety and does see a psychiatrist to help her. Everything is just getting so complicated.