← Return to Primary Myelofibrosis: so unsure of everything, need answers

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@jtcat7
thank you for commenting.
I have to say that although hydroxyurea really did a number on me, horrible ulcers in my mouth and down my throat and the thinning of my hair and then the spontaneous teeth cracking if I put all of those unpleasantries aside it took my platelet count from 17 million down to 786. when I was diagnosed I had blood clots in my brain,my heart, both kidneys, my liver and my spleen. so I'm extremely grateful, truly I am. once they had my counts right that doctor left and I was sent somewhere new. I came to her prepared with all of my research and we landed on Jakafi. I tolerate it much better but the damage is already done. do you get migraines by chance. this is something new for me.

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Replies to "@jtcat7 thank you for commenting. I have to say that although hydroxyurea really did a number..."

@lrkiesling
It sounds like you really had a run on Hydroxy side-effects. WOW.
Your platelets were 17 million??? I'm not surprised that you had clots.
Sounds like you're doing much better now.
No headaches here.