@colleenyoung Hi Colleen and all -- thanks for checking in. Yes, I've finished 2 rounds of the three continuous days of mFOLFIRINOX (with pump at home) and it's been more brutal than I had imagined. I was prepared for a lot of fatigue and GI-tract issues, 'soup to poop' but hadn't imagined being sent to the ER after round 1 for critical fecal impaction, or that in round 2, sipping water would feel like knives in my throat, or peripheral neuropathy in my fingers and feet quite yet. It's been hard not to have energy even to sit up for my niece's birthday (small, quiet get-together), or to talk with friends on the phone.

I know it's a marathon, and there will be peaks and valleys and better days than others. My biggest frustration is trying to get info at all. (Such as, when they take 4 vials of blood pre-infusion, does that include CA19-9 test, to see if my markers are changing? The nurses defer to the oncologist, who is incredibly busy.) I'd like to meet with a palliative care physician, for example, but it's tough to know how to find someone when the chemo-care staff are so overworked. Do you request that through primary care? It's a challenge having moved 3,000 miles just weeks before my diagnosis, and leaving my longtime care-providers.

Sorry to go on so long, and thanks for any thoughts,
Mary D