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Polymyalgia Rheumatica (PMR) | Last Active: Apr 15 1:04pm | Replies (126)
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@mwhite6262
I'm very sorry that you're going through this. 40mg of prednisone should be enough to relieve most if not all of PMR pain. I'd be talking to my doctor about a couple of things. Part of the PMR diagnosis is based on the response to prednisone, but a small percentage of PMR patients do not respond adequately to prednisone. Maybe you are one of them. It is also possible that you have another unknown autoimmune disorder that the hematologist may pick up in to their analysis. Push for answers and then push for the meds to get you relatively pain free in comparison to now. Please don't suffer in silence.
Replies to "@mwhite6262 I'm very sorry that you're going through this. 40mg of prednisone should be enough to..."
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Thank you for the advice. When I told the rhematologist that I was concerned that such a high dosage was no longer giving me full relief of pain he said I likely have caught a virus which would explain the body aches. He did a ton of bloodwork so hopefully he can glean if that's what's driving the pain or if for some reason the prednisone has become less effective. I'm trying to be heard and not dismissed since I have been living with this for 4 months and am really intune with everything my body feels. I'll keep after it for sure. My worry is that he wants to start tapering once I start the injections so I may be unnecessarily anxious about the change.