Follow your instincts! Continue to search for solutions. Try the resources that Lori gave you.

My story is different, yet the similar in regards to the medical community with my symptoms PRIOR to seeing a Mayo Clinic Oncology in FL.
Three years of many specialists who dismissed my concerns is discouraging to say the least.
It turns out I have 2 blood cancers, CMML 1 and Myelofibrosis 3+/3.

Two months after seeing Mayo Oncologist, I am waiting on Donor news for a Bone Marrow Transplant as soon as possible.

I wish you the best in your journey.