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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (419)Comment receiving replies
I said I was a 74 year old..that's when I was diagnosed. I'll be 79 in May. I ask where you lived as I wonder if weather has anything to do with ET. When it gets really hot I have no energy. Our weather in Michigan if different all the time...as we like to say "wait around 5 minutes and it will change". Doesn't one notice that weather affects them more since ET came into your life.
Replies to "I said I was a 74 year old..that's when I was diagnosed. I'll be 79 in..."
@msmac3 Also in Michigan, now lower part of the state instead of UP. Yes, weather changes bother me more now, but I think that's just age. Have had ET (CALR+) x 17 years, and it's only recently I noticed weather changes in the old carcass, though I have the chronic sinus problems everybody else in Michigan has. That, combined with the increased histamines that come with ET, makes Claratin my BFF.
Yes to gardening! I am down to a few porch pots and a dinky herb plot, and it's too early to put anything out. It's enough to attract humming birds, bees, and butterflies. I sometimes take a swing by the local greenhouse to see something green and to smell the dirt.
There's a bird sanctuary we go to that's kind of isolated and not crowded in summer, and that is also my happy place.
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@msmac3
Our platelet-heavy blood doesn't circulate normally.
This makes us really vulnerable to either cold or hot conditions. The first thing I do each morning is check the weather report so I'll know how to dress.