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Share Your Brain Tumor type & Years since Diagnosis

Brain Tumor | Last Active: 1 hour ago | Replies (82)

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Profile picture for hjean66 @hjean66

We found out my husband (59) had a brain tumor on February 1 of this year. Initially docs thought it was slow growing and nothing to be concerned about but wanted another MRI done, this time with contrast. We had to wait until the 23rd and in that time the tumor had doubled. Initial visit with Neurosurgeon on February 26, Pre-op on March 2 with surgery on March 3. It took almost 4 weeks before we got the official diagnosis of Glioblastoma Wild Type, unmethylated. He started radiation and Temozolomide on March 23. It has been so overwhelming, and he is so sad all of the time. He is handling his treatments well, no side effects so far, still does his strength training, core exercises and walks/jogs for 40 minutes most days. Has trouble eating as much as he should though. Physically he feels great, emotionally he is a wreck.

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Replies to "We found out my husband (59) had a brain tumor on February 1 of this year...."

@hjean66, I can imagine the emotional impact has been great for both of you. It sounds like you are staying strong to support him. This has happened so fast.

The emotional effects of a life-changing diagnosis and treatment are just as important to manage as physical side effects. I might suggest asking about help talking about these changes. Most cancer centers have specially trained social workers in cancer and/or palliative care. You might start by asking for a referral.

Here is more information about the role of oncology social workers.
- How an Oncology Social Worker Can Help https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/how-an-oncology-social-worker-can-help/

Some palliative teams also have chaplains or spiritual workers who can provide help or referrals. I'm sure staying fit and getting outdoors is a great help. Sometimes we need a bit of help.