← Return to Just got my blood test results today. I have MDS

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@katgob thank you for your post. I am currently being treated for AML. My BMB in December discovered the SF3B1 gene (MDS) . My MDS is in the wait and watch stage.
My left knee replacement was done 2 years before my diagnosis for AML and I have experienced consistent joint and bone pain especially in my knees since starting AML treatment in 2024. I take Arthritis formula Tylenol during the day and the PM formula at night. I have also started my own “clinical trial” by cutting back and tracking my artificial sugar. Sugar causes inflammation. My bone pain has improved by 60%! I sometimes take tumeric ( sp?) but not consistently.
I do miss my cookies, chocolate candy and ice cream but I know if I do consume it I will pay for it by tossing and turning all night due to pain. I hope you find a solution to help you as well. Prayers to all who are fighting back against their cancer diagnosis!

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Replies to "@katgob thank you for your post. I am currently being treated for AML. My BMB in..."

@sonieaml
So, do you have AML? I thought MDS was a precursor to MDS. I figured cutting all sugar will do that. I do bake cookies for this meeting i go to Monday night. Since my BMT I have found if i do not give them away, I throw them away. Little to no ice cream. Chocolate? I still eat some.
I will be getting a blood test, which is at my every 3 months for now visit after my BMT. I shall see if all my numbers are stable.
May we all keep working with our medical teams to iron out all our treatment kinks.