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Hello from a difficult patient in London
Prostate Cancer | Last Active: 19 hours ago | Replies (16)Comment receiving replies
@handera wow, so great to meet like-minded people at last. Sometimes I've felt like a lone lunatic deep in research and making decisions others found hard to understand. Thank you so much for buying the book and checking out the website - your's is the first real feeback I've had and it's made me very happy!
Please let me know if you think I've missed any useful interventions or you if yo have questions on any of the tier conclusions.
Many thanks,
Paul
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@paulsweeney
I know what you mean regarding feeling alone, deep in research and being misunderstood regarding intervention based active surveillance.
As of 2020, ~60% of those diagnosed with low risk PCa (Gleason 3+3) opted for AS, whereas it drops to 13.5% for those diagnosed with favorable intermediate risk (Gleason 3+4) and 3.1% for those diagnosed with unfavorable intermediate risk (Gleason 4+3).
These figures have significantly increased since 2010 and are most likely even higher in 2026 (see https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2822716)
This support group has wonderful folks over the entire spectrum of PCa severity and aggressiveness. Their questions, decisions, experience and personal outcomes shape their comments. While I think the majority in this group have decided on some type of active treatment, I appreciate their experiences and comments.
The one thing we can all agree upon is that a man needs to become his own best advocate and that each decision will look quite different, primarily driven by one's risk tolerance.