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DiscussionDoes the anxiety or fear of this prognosis ever get better?
Osteoporosis & Bone Health | Last Active: 13 hours ago | Replies (72)Comment receiving replies
Replies to "@lynn59 How were you able to get Forteo/teriparatide without having a fracture? People I have heard..."
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@kfhoz I found an endocrinologist who understood how active I am. At first, she wanted to follow textbook recommendations, but I told her I am an avid downhill skier, who skiis off-piste in the glades and cliffs in British Columbia and I had no intention of stopping. She said …. Oh my, we do need to build your bones then:)
You have to advocate for yourself …. and be prepared to pay out-of-pocket if necessary. I told her many people spend money to renovate their kitchen, why wouldn’t I spend money to renovate my skeleton. Luckily, she was still able to help me get it funded.
Thank you for the information on following with Evenity, but I’m happy with the normal sequence of teraparatide followed by zoldronic acid. I responded well, so I don’t feel the need to add another layer of drugs into my system, at this point … if Evenity is conclusively proven not to affect the heart, then I may consider it if I cannot maintain my current numbers with heavy weightlifting, nutrition and supplements:)
Good luck in your journey. This forum is the best. I learned so much from so many people and I very grateful for the opportunity to share experiences. Reach out anytime:)