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Anyone have chronic lymphocytic leukemia (CLL)?

Blood Cancers & Disorders | Last Active: 14 hours ago | Replies (196)
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Profile picture for ppolockaz @ppolockaz

@rimmy2 you were smart to question it, mine was normal then went to 4.2 a year ago but my WBC was still within normal limits. This year the WBC was elevated and the AL was 7. I questioned my PCP and she shrugged it off and just an infection or something; a friend who’s a cardiologist NP said bs you need a blood smear and presto I’m diagnosed with CLL. Good catch and always question and do research and keep informed

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rimmy2 | @rimmy2 | 1 day ago

@ppolockaz
I totally agree with you.

I am a retired RN and when I looked at my husband’s lab work through his portal, I was shocked.

It’s very concerning that this was overlooked for so many years. First elevation was in April of 2020.

I’m trying not to worry and to not worry my husband.

Do you know- do they usually wait until the overall wbc count is elevated to refer to hematology? Or, in your experience, do they wait until the ALs have reached a certain level?

Last year at AL of 5.772, my husband said, the NP said, an infection was probably the cause. However, the year before it was 5.7.

It makes no sense and to me, it borders malpractice.

Thanks in advance for your thoughts.

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