I was diagnosed with polycythemia Vera in February 2026. Currently on 1000mg of hydroxyurea and 81 mg aspirin daily.
I also have hypothyroidism - 20 plus years - and on 100 mcg levothyroxine daily. My TSH levels have been stable for years. Last result in September was 3.76. In prep for my annual physical I had the usual lab tests ordered last week. My TSH levels jumped to 6.86, out of normal range.
Reading up on drug interactions with HU, there doesn’t appear to be any issues with levothyroxine. I take the levothyroxine in the morning and the HU at night.
Has anyone with PV experienced problems with their thyroid?
@simple27 I took my promethease jak2 variant information with me to my Dr appointment. I’m showing three areas of increased risk. I’m now waiting for Jak2 lab results. Blood was drawn last Thursday (feb14) at Mayo, any idea on the turn around time for results there?
@thli'm being cared for in a major academic institution which if I named it, it would garner instant respect..After mine was drawn it seems many weeks with no word..Then I had an appointment with my primary Doctor and she asked if ii wanted to know the results..Of course I said yes..It was positive...my hematologist didn't want to hear my questioning their delaying short, keep asking.
PV JA2 is not an easy disease to live with..I was diagnosised 3 years ago but im sure I had it before then. with doctors blaming the increasing hematocrit on dehydration. Finally I had a TIA. It makes me wonder how many of us die from a stroke or heart attack without being diagnosed with PV...it's not like they can cut out a tumor..PV affects your entire body....Please, please drink plenty of water to keep the blood as thin as you can. Get under the care of a cardiologist ..ive researched this disease to death and understand it's not for the weak. I read in one of the posts that taking vitamin C resulted in less Thereputic phlebotomies. I find that interesting since my hematologist specially told me not to take vitamin C and iron..I need to research the vitamin C angle. If your able to use AI it's invaluable..im 77 close to 78 if I can use AI so can anyone else, it's very easy..AI pulls from major academic institutions..Information is power.
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I was diagnosed with polycythemia Vera in February 2026. Currently on 1000mg of hydroxyurea and 81 mg aspirin daily.
I also have hypothyroidism - 20 plus years - and on 100 mcg levothyroxine daily. My TSH levels have been stable for years. Last result in September was 3.76. In prep for my annual physical I had the usual lab tests ordered last week. My TSH levels jumped to 6.86, out of normal range.
Reading up on drug interactions with HU, there doesn’t appear to be any issues with levothyroxine. I take the levothyroxine in the morning and the HU at night.
Has anyone with PV experienced problems with their thyroid?
@thli'm being cared for in a major academic institution which if I named it, it would garner instant respect..After mine was drawn it seems many weeks with no word..Then I had an appointment with my primary Doctor and she asked if ii wanted to know the results..Of course I said yes..It was positive...my hematologist didn't want to hear my questioning their delaying short, keep asking.
PV JA2 is not an easy disease to live with..I was diagnosised 3 years ago but im sure I had it before then. with doctors blaming the increasing hematocrit on dehydration. Finally I had a TIA. It makes me wonder how many of us die from a stroke or heart attack without being diagnosed with PV...it's not like they can cut out a tumor..PV affects your entire body....Please, please drink plenty of water to keep the blood as thin as you can. Get under the care of a cardiologist ..ive researched this disease to death and understand it's not for the weak. I read in one of the posts that taking vitamin C resulted in less Thereputic phlebotomies. I find that interesting since my hematologist specially told me not to take vitamin C and iron..I need to research the vitamin C angle. If your able to use AI it's invaluable..im 77 close to 78 if I can use AI so can anyone else, it's very easy..AI pulls from major academic institutions..Information is power.
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