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PNET grade 1: Anyone have adjuvant therapy after surgery?

Neuroendocrine Tumors (NETs) | Last Active: Apr 11 7:32pm | Replies (12)
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Profile picture for Turkey, Volunteer Mentor @tomrennie

@margariida I believe that DC therapy is only available in trials in the US. Here is a link about Mayo's:
https://www.mayo.edu/research/clinical-trials/cls-20307011
As you can see, it isn't for NETs.
Here is one resource, Neuroendocrine Tumor Research Foundation, that shows NET trials: https://netrf.org/2026/03/16/netrf-clinical-trial-roundup-march-2026/
Surveillance seems to be the norm post surgery. If you find that adjuvant treatment is available in the US post surgery for NETs, please share that information with us. I have been living on chemo for a stage 4 PNET myself for over 3.5 years. I am very interested in learning what you find. Thank you. By the way, what surgery did you have to remove your PNET?

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Replies to "@margariida I believe that DC therapy is only available in trials in the US. Here is..."
margariida | @margariida | Apr 11 11:31am

@tomrennie Olá, eu fiz a cirurgia de whipple.
Tinha 4 gânglios positivo.
Daí a minha procura por algo adjuvante. Já pensei em células dendricas na Alemanha,mas é caro e não sei se funciona a 100%
Em grupos de Facebook há quem partilhe que fez e está a ter bons resultados.
Qual o grau do teu tumor?
Foste operada?
Há quanto tempo?
Obrigada

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