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Does Pluvicto work? What's the prognosis?

Prostate Cancer | Last Active: Mar 8 1:16pm | Replies (66)

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Profile picture for deccakid @deccakid

Thanks, and "Nahhh"...I take everything in stride...No need for excessive concerns (NOT worries) except those first 3-5 days. My legitimate concern is for those around me. I am single and have gone through these entire procedures by myself...No biggie, I'm used to it...But I speak out of respect for those that HAVE to be around me...Drivers, store attendants, should I have chosen to shop,...neighbors, my teenage daughter, etc...I mean, why take any chances??
I read everything with a grain of salt and a humorous (yes, I know this is serious stuff, but that's how I keep my sanity!!) outlook...And, since this is my first rodeo with Pluvicto, I'm ever more watchful...
I thank you for your input...how is your husband now, 2 years after?

Blessings

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Replies to "Thanks, and "Nahhh"...I take everything in stride...No need for excessive concerns (NOT worries) except those first..."

@deccakid
Just want to say kudos to you for caring about others and taking precautions. I would be the same way. < 3

@deccakid Please, please do NOT worry about people you have brief and incidental contact with after your infusions, such as neighbors, store cashiers, drivers, etc. As for your daughter, just prevent her from contacting your bodily fluids for three days after your infusions (assuming she isn't pregnant) and don't worry about being around her otherwise. We were in a hotel in Rochester and its breakfast room, and all over Mayo Clinic buildings and in local restaurants, and were told such casual contact could not endanger anyone else.

My husband was first diagnosed in 2005, had local radiation treatments, had his first recurrence in 2011, complete with metastases, and became a Mayo Rochester patient of Dr. Kwon and his colleagues the same year. He has had most of the treatments available for Stage 4 prostate cancer, including Lupron, Zytiga, docetaxel chemotherapy, many instances of SBRT and other radiation and ablation of spinal metastases, and Pluvicto. The treatment protocol is jokingly called "whack a mole" by his providers, but by going after each recurrence and its metastases as soon as they pop up, his doctors have kept him alive for 21 years now with a pretty good quality of life. Pluvicto was not very successful for my husband, and we haven't yet tried infusions with the alpha particle Actinium, though we are interested in a clinical trial of that treatment. The moral of the story is to keep on top of your cancer with good doctors, knock it back when it pops up, and hang around long enough for new treatments to become available. Good luck on your Pluvicto journey, and may you be one of the men for whom it is very effective.

@deccakid , you do need humor. I dressed for Halloween as a Pluvicto glow worm.