@reggiemc
Hi. Reggiemc. Your reactions to Budesonide are par for the course. It's a potent steroid and each 3 mg pill is the equivalent of 10 mgs of prednisone! A 9 mg dose is 30 mgs a day of prednisone! They say it's absorbed in the gut, but, in reality, it is "mostly" absorbed in the gut, but there's plenty of systemic action, thus the bruising, thinning skin, more infections and slower healing. It is also a drug known for causing adrenal suppression which can progress and become a big issue. Take the lowest dose possible for you, but try to rely more on pepto bismol and Immodium to keep you from needing the higher doses. Doctors don't pay much attention when they learn about MC because it doesn't lead to cancer like Crohn's or ulcerative colitis. They just consider this a "nuisance " disease, apparently not morbidly significant. The quality of life issue is often overlooked. I think this is especially true for the elderly patient. I guess because we're already falling apart. I'm kind of lucky my RA drugs weren't working out well enough and my doc switched me to a drug that happens to work on all kinds of colitis, including MC. But, it's only approved for the "deadly" kinds, so insurance won't cover it for MC. I'm sorry you're suffering. I hope that things improve for you.