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Severe RLS solved for me

Sleep Health | Last Active: Apr 15 1:43pm | Replies (69)

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Profile picture for lauriefeenstra @lauriefeenstra

@lilly71
Requip is an older medication for restless legs and for some people overtime makes restless legs worse. Increasing the dose works awhile but the restless comes back. No longer first line treatment. See someone from sleep medicine. They will check your blood iron studies.
maybe gabapentin or low dose opioids.
My experience with gabpentin is it makes my pain worse.
I have tried all the meds, the only thing that has worked is low dose opioids. I have used the fentanyl patch, (worked but not the full 3 days) then methadone ( legs were pretty good, but had trouble falling asleep) and currently using Vicodin at 4 PM, 8 PM and midnight. It is working currently. Restless sounds like not a big deal or problem but it’s horrible, I have had many many nights in tears. Not getting sleep until 5 or later, pacing and falling asleep standing up, totally frustrated. I hate it. Sleeping well is such a gift.
I do find other physicians think using Vicodin for restless legs is crazy or any opioid. Always Ask if I tried all these other meds and yes I have. The new medical treatment guidelines have it listed as a treatment. I have had other mds that treat me like I am a drug seeker. Which is so far from the truth would rather not have restless and just sleep like your average person.
Best of luck.

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Replies to "@lilly71 Requip is an older medication for restless legs and for some people overtime makes restless..."

@lauriefeenstra Have you tried pramipexole for your RLS (prescription)
I've tried many things for my RLS, and it is the only thing that eases the misery, and let's me get a reasonable amount of sleep.