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Profile picture for shookercooker @shookercooker

I had idiopathic intestinal pain for a few decades. Last September /October things became acute for six weeks. Iwas treated for an possible infection. After 4 emergency room visits finally got to see a gastroenterologist. My caloprotectin was 431. After another 3 weeks was scheduled for a colonoscopy. The half gallon of treatment did not go through causing extreme pain. I was diagnosed with a small bowel blockage. Emergency surgery removed 8" of jejunum. The biopsy came back as amyloidosis. I made an appointment at Mayo. Blood, fat and bone marrow revealed no amyloids. Mass spectrometry was inconclusive. In January finally had the colonoscopy. A biopsy of the duadenum revealed more amyloids. This time the mass spectrometry test at Mayo showed AApoAIV (Apolipoprotein A-IV) Amyloidosis. I am going back to Mayo early June for kidney ultrasound with possible biopsy and a cardiac MRI. AApoAIV (Apolipoprotein A-IV) Amyloidosis tends to deposit the amyloids in the micro vessels of the intestines, kidneys, and heart.

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Replies to "I had idiopathic intestinal pain for a few decades. Last September /October things became acute for..."

@shookercooker How did you make out with your appointment at the Mayo Clinic in June? I hope you were able to get more definitive answers.
Wishing you good days ahead!