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4 years with Long Covid episodes, Turning point?, Remmision??
I first contracted Covid in 2022. Then contracted again in 2023 & 2024 ( I had 4 vaccines). Then, after getting over the covid virus in March of 2024, LONG COVID came for a visit.
I've been dealing with LONG COVID now since at 2024, maybe longer.
I've been isolating ( whenever possible), since October 2025 due to my latest episode of Long Covid which began in July 2025.
This is March 27th, I am happy to say, ( with reservations), I feel as though my Long Covid saga may be in remission.
I know this is a large statement to make, but because of my recent health improvements, maybe I've turned a corner.
I've been monitoring this and many other forums for about 3 years now, looking for "GOOD INFORMATION" from fellow struggler's.
So, during this last episode, which started in July 2025
and was the worst episode I've had.
I had a least 20 symptoms, at various times, including: night sweats; FATIGUE; GASTROINTESTINAL; brain fog; leg numbness; tinnitus; cold sores; personality changes,( which felt like dementia, schizophrenia, Alzheimer's, depression ).VASCULAR, inflammation, A-fib; sleep problems, etc ,etc.
I became disillusioned with doctors, Covid specialists , Cardiologists; etc, with what I have felt to be limited treatments. At no fault of their own, the learning process showed me that doctors deal with symptoms in isolation. Meaning, they have treatments for individual symptoms, but not multiple symptoms together.
By October 2025 I felt that my body was deteriorating, and thinking, any of my symptoms would possibly lead to my demise.
Because of this, I decided to use various protocols and supplements, that I had researched, which I found on various forums and research sites.
I felt I had nothing to loose!
My remission (?), began in November 2025, as my symptoms began to subside.
I wasn't sure, because I felt I had beaten it before, only to have it return again and again. I still find myself living with the thought, "will it return?"
Things progressed, by November 2025 my symptoms had diminished enough that I tried to increase my endurance. As a test, I attempted a 4-mile strenuous hike. with an ascent of 3300ft ..... I didn't even make it half way!
I tried again in December 2025, only making half way.
I knew my endurance was a pivotal test. Fatigue wiped me out. I couldn't exercise without fatigue wiping me out after.
I've been gradually building endurance since December.
I had lapses, which told me to slow down and not push it too much. (swimming hiking biking).
My last attempt at the hike was Wednesday 25th March 2026.
I made it! With the help of my new rescue dog "Spud"
The hike ended up being 5 miles, with an ascent of 3300ft and 7200ft elevation peak. To me, AT 70, NO MEAN FEAT ! . It took us 6 hours.
This is Friday 27th March 2026. I rested yesterday, I feel some minor twinges, ( to be expected), but generally good!
Having had the Covid 19 virus at least 4 times, and at least 4 episodes with Long Covid. I felt my body was “run-down”, and I should somehow try to prevent myself from getting sick for a while, so my body could heal (?).
I decided to isolate as much as possible; possibly for a year!
I started in October 2025 , while dealing with my latest episode of Long Covid.
I have not contracted the covid 19 virus since March 2024.
I'm still isolating, with protocols.
Hopefully, my progress continues.
I know that I’ve lost hope from time to time with this illness, ( disease). We’ll see what happens, This does feel different from other feelings of well-being I’ve felt in the past.
Hopefully, it continues.
I'll post again, to let people know how, (or if) the progress continues.
The process has been long, but I'm staying the course. It's a long story….I'm hearing there’s around 20 million of us, in just the USA.
I’d like to hear if there are others living in remission, and for how long?
Or, how long between episodes?
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@lkirnbauer
Personally, because of what I've been through, (over the last 4 years).
So I believe, anything an individual tries, and it works for them; then that's fine.
I have NOT found anyone( doctors included) with definitive answers to this illness, OR, no one is saying they have the answers.
(Research, trial and error) ; is pretty much what I've been trying. I have a journal of my experiences. Looking at it, my journey has been one of Hope, then, Lose of Hope, trying various protocols and supplements.
It is enjoyable however, to have a feeling of well-being for a while.
( And it does seem to be progressing).
Time will tell. All the Best with whatever path you take!!!
@fmwentworth I just read that Naltrexone can be used for inflammation. Is that what your using it for?
Long Covid specialist prescribed colchicine 0.6mg ( off prescription) for 2 weeks for inflammation. It lessened my inflammation, and then I started looking at my other symptoms for solutions. I used supplements like lugol's iodine, melatonin, and others. The iodine calmed many of my other symptoms. The Melatonin (10mg) allowed me to get some well needed, restful sleep, as another symptom was insomnia. it's a long story.
@aikomike
I have been prescribed low dose Naltrexone starting with 0.05 mg. I have only been on it for a few days. They have you double it every two weeks up to a max of 4mg. I also take melatonin at night but only 2 mg. It seems to help. I also use CBD (no THC) sleep gummies. Do you have low thyroid since you are taking iodine? Glad to hear that some of your inflammation has lessened. That is what I am hoping for. Best
@aikomike So, because of my experiences with the medical system. I became disillusioned with the whole business. ( and I found it is a business). I began reading about other people's experiences with this disease. Because I felt I had nothing to loose. I began reading other peoples symptoms and treatments. I found some people had good experiences with the medical system.
Because of my symptoms, I began reading and researching about the thyroid. I had been tested previously for thyroid condition, all was good.
However in the 4 years dealing with this, no doctor or specialist told me to get the various tests that would indicate Long covid . (Thyroid tests were one of them).I found there are other illnesses that have a lot in common with many of the symptoms found with Long Covid.
Indirectly this lead to me looking into, and researching the thyroid.
I felt I had nothing to loose, I began to take Lugol's iodine 2% orally, starting low, then increasing after a week, then, halting after a couple of weeks for a few days. Then beginning again. As long as there were no ill-effects. I did this for 3 months, and noticed my symptoms diminishing, greatly. There were lapses. When my symptoms began to diminish I also reduced the Lugols iodine . I would only take the melatonin when ( because of insomnia), I couldn't sleep. I seemed to benefit from this also.
Then I attempted to build my stamina again. ( I'm still doing this).
Like I say , it's a long story. But all the best to you with whatever you do. I still have my sluggish days, but they are nothing like they were!! Things do look better, but as I've said many times before, time will tell!