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Staying Motivated for the Long Haul
Healthy Living | Last Active: Jan 29, 2023 | Replies (499)Comment receiving replies
@contentandwell your view was beautiful! I think you should call your transplant team and get their opinion. It most likely isn't rejection, but they should know about it.
I hope you get answers.
JoDee
Replies to "@contentandwell your view was beautiful! I think you should call your transplant team and get their..."
@contentandwell, Three times in one month. Please do whatever you need to do to get in to see your doctor! Or a very good gastroenterogist who is connected to a transplant facility.
Hugs,
Rosemary
@rosemarya I am already looking into gastros at MGH, and I asked the nurse in transplant who is my primary contact, via the portal, if there is someone in particular I should see. I suspect not so I will just pick one, and not bother with my PCP at all. I will never trust him with an important diagnosis again. Not sure if I mentioned this, but I realized just recently that the delay in getting diagnosed could have cost me my life because if the malignant lesions I had, had been slightly larger I would have been eliminated as a candidate.
JK
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@jodeej I did mention it in a message on the portal. The only problem is that every message and phone call is intercepted by a nurse in whom I do not feel a lot of confidence. For this to happen three times within one month, something's going on, for sure.
JK