Anyone else here with AApoAIV (Apolipoprotein A-IV) Amyloidosis

@shookercooker Welcome to Mayo Clinic Connect. I’m not sure what this is that you have had. But there is one thing I know being a member of Mayo Clinic Connect, you are not alone! It may take awhile for members with similar experiences to chime in. Is this rare?

AApoAIV (Apolipoprotein A-IV) amyloidosis is an extremely rare form of systemic amyloidosis, often presenting as a rare cause of cardiac amyloidosis. Studies suggest it represents a very small fraction of cases, with one, this JACC study, identifying AApoAIV in only 0.6% (13/2096) of surveyed cardiac amyloidosis cases.
It also affects the kidneys and intestines.

Hello, @shookercooker. I've added your conversation to the Blood Cancers and Disorders group, where there are others who've talked about their experiences with amyloidosis. Even if there isn't anyone with this specific type of amyloidosis, we're here to listen and support you.

Are you comfortable sharing what type of symptoms you've been experiencing?