Is it okay to take B12 with essential thrombocythemia (ET)?

Hi @preacherswife1977, Vitamin B-12 is an important building block for red blood cell formation, cell metabolism, nerve function and the production of DNA. Having a low B-12 level can cause symptoms such as tingling in hands and feet. But from my understanding high levels of B-12 from supplements can also produce similar symptoms. Even though it’s a water soluble vitamin, it can still create side effects.
Members in Connect can’t diagnose or prescribe medications or supplements. So this is a great question, but one that would be best answered by your hematologist if it’s safe for you to take or not.
Have you had a recent Vit B-12 blood serum test to check your level?

No I have not had my B12 checked. Was thinking it may help the uncomfortable feeling in my feet.

The B-12 may help the tingling, as others have mentioned. However, there are several conditions which can cause tingling in the feet besides low vitamin B-12, including underlying health conditions or other deficiencies. For example, a magnesium deficiency can be a factor in peripheral neuropathy, include numbness and tingling or a pinched nerve.

So before starting any supplement it’s a good idea to check in with your doctor and maybe have some blood tests.

I had tingling in my knees when my B-12 was way too high. There were other symptoms as well.

@preacherswife1977 I don’t feel tingling in my feet. My feet always feel like they’re numb. It’s a very strange feeling. It is always there. I notice it more at night when I’m laying down. Although, my hands and feet feel strange… It’s hard to describe.

Question along this line. I’m new to this ET thing. (Diagnosed with ET/Jak2….
Are there any Specific DO NOT TAKE with this diagnosis? I’ve not been told.