Prednisone tapering

Posted by betsyhase @betsyhase, 1 day ago

I started Prednisone on 2/6/26 after being diagnosed with PMR. My starting dose was 12.5mg which gave me great relief but not totally. My PCP wants me to decrease by 1 mg per month. My concern is that I am noticing the joints in my hands are still swollen and stiff. This is an improvement from where I started but not my normal. My knees are in pain and weakness in my legs is constant. I am also retaining fluid by noticing my weight going up and feeling puffy. I am to get some bloodwork done on 4/9.
My question is did you get completely pain free with Prednisone?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

jabrown0407 | @jabrown0407 | 2 hours ago

I have had a great deal of success using a journal and sharing with my doctors. It is much more detail than they normally have and it helps them "see" what you are experiencing. I've even had doctors say "I expected a message from you with the log attached. Are you okay? " I have them trained to look for it and I send it a day or two early so they have a head's up.