Me too! For 6 months now. No one knows what to do with the dentist says oh it's fine I have white tongue and dry mouth so my rheumatologist gave me something to increase saliva and it's working. But I still have the white tongue and it still bothers me very much. I have two autoimmune diseases arthritis and hypothyroidism. I've seen three ENTs one arthritis doctor dentist and even walk-in clinics no one knows what it's going on they don't seem to understand how bad this makes my life. Finally the ENT is making me go to Boston to bring them in women's hospital to see oral specialist in June hopefully they will know what to do with me. Good luck to you
@synthiame Yes, several of us have posted about a constant salty or bitter taste or both, that no doctor has been able to cure or even know what is causing it. Is your taste problem all day or only when you are eating. I am okay for the most part when I eat except for really salty foods which taste even saltier but my taste issues last all day. I have tried the medications that produce saliva but they do not help and I have tried everything that all the different specialists have recommended without any success. I do have Sjogren's disease but those patients seems to have no taste at all, or the taste is bad only when they are eating, not all day. Let us know if the oral specialist comes up with a diagnosis or at least some treatments that actually work.
@neisie13
I am a tonsil cancer survivor (7.5 yr). Xylimelts were a Godsend for my dry mouth. It has a very mild mint flavor with xylitol to stimulate the damaged saliva glands. They have a surface that can stick to your gums and they last for up to four hours. Good for sleep. Hope this information helps.
Phil
@neisie13
I am a tonsil cancer survivor (7.5 yr). Xylimelts were a Godsend for my dry mouth. It has a very mild mint flavor with xylitol to stimulate the damaged saliva glands. They have a surface that can stick to your gums and they last for up to four hours. Good for sleep. Hope this information helps.
Phil
@lummy Phil, I also use Xylimelts and thank you for reaching out. My dentist gave me some samples when I was diagnosed with Sjogren's Disease but now they not only keep my mouth less dry but the mint flavor disguises the bad taste between meals. My brother-in-law had radiation for throat cancer and used these also. I am so glad you are a long-term survivor!!! Is your saliva back now?
@lummy Phil, I also use Xylimelts and thank you for reaching out. My dentist gave me some samples when I was diagnosed with Sjogren's Disease but now they not only keep my mouth less dry but the mint flavor disguises the bad taste between meals. My brother-in-law had radiation for throat cancer and used these also. I am so glad you are a long-term survivor!!! Is your saliva back now?
@neisie13
Hi,
My saliva is somewhat better now, but it does not have the same qualities that help form a bolus when eating. I have to wash down much of what I eat. I have dysphasia and with the saliva issues, my meals are an hourlong process.
Best wishes,
Phil
@neisie13
Hi,
My saliva is somewhat better now, but it does not have the same qualities that help form a bolus when eating. I have to wash down much of what I eat. I have dysphasia and with the saliva issues, my meals are an hourlong process.
Best wishes,
Phil
@lummy I totally understand. My father had lymphoma and of course radiation to his throat which wiped out his saliva. Also, I'm not sure if you know much about Sjogren's but it affects the digestive tract too. Since I have limited saliva I have a lot of trouble eating certain foods, and if I don't drink enough while eating the food gets stuck in my esophagus. I have to wait about 10 minutes until it goes down. My husband is done eating way before me but I know my problem is not nearly as severe as yours. I'm so sorry about the lasting effects of your cancer..
@lummy I totally understand. My father had lymphoma and of course radiation to his throat which wiped out his saliva. Also, I'm not sure if you know much about Sjogren's but it affects the digestive tract too. Since I have limited saliva I have a lot of trouble eating certain foods, and if I don't drink enough while eating the food gets stuck in my esophagus. I have to wait about 10 minutes until it goes down. My husband is done eating way before me but I know my problem is not nearly as severe as yours. I'm so sorry about the lasting effects of your cancer..
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I have plenty of saliva. I rarely have dry mouth, so I don’t think that’s my issue.
Me too! For 6 months now. No one knows what to do with the dentist says oh it's fine I have white tongue and dry mouth so my rheumatologist gave me something to increase saliva and it's working. But I still have the white tongue and it still bothers me very much. I have two autoimmune diseases arthritis and hypothyroidism. I've seen three ENTs one arthritis doctor dentist and even walk-in clinics no one knows what it's going on they don't seem to understand how bad this makes my life. Finally the ENT is making me go to Boston to bring them in women's hospital to see oral specialist in June hopefully they will know what to do with me. Good luck to you
@neisie13
I am a tonsil cancer survivor (7.5 yr). Xylimelts were a Godsend for my dry mouth. It has a very mild mint flavor with xylitol to stimulate the damaged saliva glands. They have a surface that can stick to your gums and they last for up to four hours. Good for sleep. Hope this information helps.
Phil
@lummy Phil, I also use Xylimelts and thank you for reaching out. My dentist gave me some samples when I was diagnosed with Sjogren's Disease but now they not only keep my mouth less dry but the mint flavor disguises the bad taste between meals. My brother-in-law had radiation for throat cancer and used these also. I am so glad you are a long-term survivor!!! Is your saliva back now?
@neisie13
Hi,
My saliva is somewhat better now, but it does not have the same qualities that help form a bolus when eating. I have to wash down much of what I eat. I have dysphasia and with the saliva issues, my meals are an hourlong process.
Best wishes,
Phil
@lummy I totally understand. My father had lymphoma and of course radiation to his throat which wiped out his saliva. Also, I'm not sure if you know much about Sjogren's but it affects the digestive tract too. Since I have limited saliva I have a lot of trouble eating certain foods, and if I don't drink enough while eating the food gets stuck in my esophagus. I have to wait about 10 minutes until it goes down. My husband is done eating way before me but I know my problem is not nearly as severe as yours. I'm so sorry about the lasting effects of your cancer..
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1 Reaction@neisie13
I was not aware of Sjogren’. I just looked it up. I can see how it is a tough one. Thank you for your response.
Take care.
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