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Where is everyone from and what treatment works for you?

Posted by bevcalvil @bevcalvil, Mar 31 7:53am

Hi! My name is Beverly and live in Jax Florida. Where is everyone from? And is anyone here found a treatment plan for fibromyalgia that works with you? Thank you!

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

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jeannesf1 | @jeannesf1 | 1 day ago
In reply to @beejenigma "@jeannesf1 Contact Carefirst Pharmacy in New Jersey. They compound my LDN. You will have to have..." + (show)
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@jeannesf1 Contact Carefirst Pharmacy in New Jersey. They compound my LDN. You will have to have your dr call it in. They are great.

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@beejenigma thank you
. The problem is the on line doctor that was prescribing the LDN, haven’t been able to get through to. My regular insurance (Kaiser) will not prescribe it.

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Beejenigma | @beejenigma | 1 day ago
In reply to @jeannesf1 "@beejenigma thank you . The problem is the on line doctor that was prescribing the LDN,..." + (show)
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@beejenigma thank you
. The problem is the on line doctor that was prescribing the LDN, haven’t been able to get through to. My regular insurance (Kaiser) will not prescribe it.

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@jeannesf1 Buy it. It is not covered by insurance but have the dr rx it and contact Carefirst

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jeannesf1 | @jeannesf1 | 23 hours ago
In reply to @beejenigma "@jeannesf1 Buy it. It is not covered by insurance but have the dr rx it and..." + (show)
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@jeannesf1 Buy it. It is not covered by insurance but have the dr rx it and contact Carefirst

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@beejenigma Thank you so much!

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kjofmd | @kjofmd | 20 hours ago
In reply to @jeannesf1 "Im from San Francisco, California. Was diagnosed about 18 years ago. Have taken myself off the..." + (show)
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Im from San Francisco, California. Was diagnosed about 18 years ago. Have taken myself off the Cymbalta (awful withdrawal), ongoing long term mental side effects and also got off gabapentin (memory problems). Was taking LDN for almost 6 months and haven’t seen much change. Couldn’t get back on doctor’s website to order more so gave up. Anyone know where I can order some? Using heating pad (my first go to but relief is temporary), or ice. Not so often Advil or muscle relaxant. I’ve ordered some CBD/hemp gummies and will see how it goes. I also go to a chiropractor and also provides a break from the pain. Just managing but grateful pain not as bad as when I first got sick. I’m tired. Hoping and praying something will work to at least get some more added relief occasionally instead of ongoing chronic pain.

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@jeannesf1

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kjofmd | @kjofmd | 20 hours ago

If you haven’t already, I suggest you join the LDN Research Trust Facebook group. They have lots of science-based info as well as lists of providers.

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jeannesf1 | @jeannesf1 | 18 hours ago
In reply to @kjofmd "If you haven’t already, I suggest you join the LDN Research Trust Facebook group. They have..." + (show)
Profile picture for kjofmd @kjofmd

If you haven’t already, I suggest you join the LDN Research Trust Facebook group. They have lots of science-based info as well as lists of providers.

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@kjofmd I will! Thank you, I really appreciate it!

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sallylang | @sallylang | 4 hours ago

I am from Wisconsin. Started having a diagnosis of myalgia in the 1990"s. Formally diagnosed in 2017 with a blood test from Epic-genetics in California. Have always been able to handle the pain by remaining very active. I am now 76 and the past couple of years have been terrible. I don't know what causes what pain because I have so many secondary diagnoses from Fibromyalgia, osteoarthritis, spinal stenosis, slipped disc, restless legs, IBS-C, among other medical problems. Furthermore, I have not taken any specific medications other than Tylenol for the pain. I am grateful I wake up breathing every day. I do what I can do during the day and take many coffee breaks during the day. Thankfully I am retired and don't have many demands of my time.

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