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Inhaled Amikacin and Clofazimine
MAC & Bronchiectasis | Last Active: Apr 5 6:45pm | Replies (26)Comment receiving replies
@janetannfaust to my knowledge, the only side effect I have from the clofazamine is a tan and all of the freckles on my face have popped and are more noticeable. I am very fair skinned to begin with. I split my dosing up. I take one clofazamine and one half of the linezolid at Noon and the other half of the dose at night. I am sticking with the linezolid since my PCP calls it a great heavy hitter. I only have a slight bit of neuropathy in the bottom of my right Halux. I can live with that.
On Friday, I will have my yearly Chest CT and a complete audiology checkup. I have worn prescribed VA hearing aids since 2015 - service related disability. The Arikayce makes it worse.
I have labs also. My February EKG did not indicate a heart block. I have never been on Nuzyra.
I feel I am doing better with the longer daylight and warmer weather. I am able to get out and about more.
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@notnancy88
It sounds like you are tolerating your antibiotics. I am fair skinned too and had freckles when I was younger. Hoping it isn’t spots of darkness, time will tell.
My diagnosis is Mycobacterium Abscessus and not many options of treatment for mine. Started in August with IVs for 2 months and taking oral drugs and inhaled Arikayce since late October. My February CT scan showed significant improvement but still have the same diagnosis from December bronchoscopy.
I agree with you about more daylight and warmer weather.
Good luck with your upcoming CT scan. 😊