I am sorry you are having so little success in dealing with EGPA. It is a damaging disease and takes time to get under some control. I was diagnosed two years ago after over a decade of gradual advancement in symptoms. I was put on prednisone at 40 mg for a start to halt advancement while beginning Nucala at an infusion center. It took several months to see my eosinophils go down and to start to see improvement. It took a total of 9 months to slowly wean off prednisone to avoid a relapse. Since that point I have been well controlled by Nucala alone. Only my sinuses seem to have their own problems and I deal with them separately. I consider myself very blessed that Nucala works for me but wonder if you were on prednisone for initial support while letting the Nucala take effect? Prednisone quiets the vascular and lung snd intestinal symptoms while waiting for Nucala to control eosinophilia. It takes patience to SLOWLY get off prednisone. This site has very good advice on tapering that I followed when my doctor’s taper was too abrupt and brought back some symptoms. The slower taper worked very well. I am 80 years old in a few weeks and seem yo be doing well on the monthly series of shots.
Were you kept on prednisone initially or only put on Nucala or other drugs? It may have made a difference in outcome. Just my own experience here but we are all in the same boat, rowing hard, and hope we can help each other heal.
Good luck and don’t give up. It is not an easy fix but there is hope!
Wishing you well,
MTH13