@bbisno There is the Hypertrophic Cardiomyopathy Association which lists Centers of Excellence (COE) for HCM. I just looked and the Bluhm Cardiovascular Institute at Northwestern is a COE. Good! I, too, was first made aware that something was amiss when a heart murmur developed in my mid-late 50's, looking back, I am quite sure my dad had HCM. I am not sure where UM is, the specialist cardiologist hopefully is one in HCM. HCM is often misdiagnosed and I'm glad that did not happen to you. None of us wants to be on the HCM highway, but here we are. It looks like you are well on your way in establishing physician relationships, having the necessary tests and getting appointments. Do ask about genetic counseling, if your HCM gene can be found, other blood relatives besides your niece may discover they have it too. Please do keep us informed during your journey!