← Return to Living with Parkinson's Disease - Meet others & come say hi

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Profile picture for teddieann @teddieann

Hello! I am new to this group and just wanted to connect. I was diagnosed with Parkinson’s about 8 months ago but now realize that I have had symptoms for nearly a decade. I need to get past frustration that it took so long to start getting the help (medication, PT) that I need. I can’t be the only one that this has happened to.

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Replies to "Hello! I am new to this group and just wanted to connect. I was diagnosed with..."

@teddieann Yes, for a while I was in denial, then rationalization, then acceptance. I also lowered or stopped taking medication because I thought after a good day that I was cured! However, I was quickly reminded by the reappearance of symptoms that I was wrong. I have made every mistake that could be made with my medication, which has caused me to hide in bathrooms or pace until I unlock, but I try not to make the same mistake too many times. Sometimes, no matter what you do, the disease is going to win, and all you can do is wait it out. But getting past the mental barriers is quite important in my experience.

Hello @teddieann and welcome to the PD support group on Mayo Clinic Connect. I agree with @nova11723 about the frustration of getting a diagnosis many years after symptoms began. I've found it works best for me to be grateful to finally have medication and a treatment plan of exercise and a readjustment of my activity levels to accommodate the disorder.

As this your first post, perhaps you could share about how you are doing with this new diagnosis. For example, how are you dealing with the symptoms of PD now? What is the most bothersome symptom you are having?