I am almost the same, but I don't get migraines and my left sided numbness from head to toe for about 10 years has been constant. 2 normal emgs, a few MRIs that show the start of some disc disease. supposedly the slight herniation is not compressing spinal cord and is not causing my symptoms. I've had some vitamin deficiencies, b12 and D, but doctors say that they have never seen that present like this. Rheumatologist at my hospital won't see me, says bloodwork is fine.
I am hypermobile, unsure if it could be hEDS.
My joints have a deep ache. Constant restless leg feeling on the whole L side. My hip, knee, and calf areas twitch every single night.

No muscle loss or weakening.
Always tired.

Gonna beg my neurologist again to do all the tests even if she doesn't think they are necessary. Then I'm making appointments at different doctors. I get so depressed and angry that I stop trying to figure it out and "just live with it" like the doctors have said I have to do. Every couple of years I have the mental and physical energy to try some more investigating.

My best guess is some sort of compression that happened during any one of my falls when bouldering at the gym 10 years ago.
Started with my arm and face, then eventually whole L side. Has gotten a little worse overall but slowly, so the docs aren't worried. Constantly get flares if I do too much.