Hi @ejacobs16 and welcome to Connect. You'll notice that I moved your message to this exisiting discussion group where you can meet other members talking about pleomorphic xanthoastrocytoma tumor (Pxa), like @bjh369 @lmp1 @daniellemarie @dgruk @kodabear and others. If you click VIEW & REPLY you will be taken to this message in the discussion and you can scroll through past messages.

This must be so difficult for you, your friend and her whole family. Has she had proton beam therapy?