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Essential Thrombocytosis General Questions

Blood Cancers & Disorders | Last Active: Apr 4 1:29pm | Replies (36)

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Profile picture for nohrt4me (Jean) @nohrt4me

@sdcgcarroll Patient Power offers tips, but a lot of their articles like this one just rehash common sense stuff like moderate exercise, prioritizing, decent sleep, stress reduction, and diet:
https://www.patientpower.info/myeloproliferative-neoplasms/living-with-myeloloproliferative-neoplasms/im-exhausted-10-tips-for-coping-with-mpn-fatigue
HU helped my fatigue, but if you've taken that off the table, you might talk to your GP. A few younger ET patients I talked to some years back found Adderall helpful for fatigue.

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Replies to "@sdcgcarroll Patient Power offers tips, but a lot of their articles like this one just rehash..."

@nohrt4me thank you for your response. I honestly haven’t taken HU off the table (even tho it does scare me) but I’m told my platelets aren’t to the point that they want to put me on it yet. He said he’d like to hold off as long as possible. Doctors here don’t know much about ET so I feel like they are learning with me.