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I empathize with this 100%. I am 55 and am my 59 year old husband's carepartner. He has Lewy Body dementia as well as cirrhosis. I also work a full time job, and the people at work are about my only "social" interactions. I'm either at work or at home. I have to be somewhat guarded as far as how much info I let out, as I am the head of my department. People ask all the time, how ya doing? How's your husband? Most of the time I am doing all I can do to not run away, from work, from home, so I struggle with the option of whether to truly answer the question, or do I just saw-fine-he's ok.... I know they are being kind, and likely don't want to hear about it all. No one knows what to say when I tell them all of the harsh realities. And I get that, I've been that person before, but I feel like I always have genuinely listened to people, because if they are actually opening up, it is because they need to. And they aren't necessarily looking for a reply, or advice, they just need to sound off to someone besides the cat or the dog. This is a hard life-everyone here, on this forum is aware of this. I have felt like I am on an island so often. Even my brother, my only family left, and he is my rock-doesn't know what to say. He listens, but I know he is like-holy shit, what do I say. This is the first time I have looked into a support group, so it is my first time posting. I'm not much of a social person, don't have time to be, but maybe we can all be here for each other? We can all sound off and say it like it is, no matter what we are feeling. I have felt so many emotions that make me feel guilty, sad, desperate, hopeless, like life is over. And I feel bad for feeling like that. I feel like I shouldn't be focusing on what I feel, it isn't about me, stop being selfish..... Anyway-I started this off wanting to say that I 100% empathize with your feelings.

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Replies to "I empathize with this 100%. I am 55 and am my 59 year old husband's carepartner...."

@sporkandromi welcome and I think you've made a good choice regarding where you can go to get support and information. I wish you the best and I hope your journey continues to get better and easier with each passing day.

@sporkandromi
Wow. I have no adequate words. You are walking such a hard road. I relate to all the feelings you described. Sometimes I feel like caregiving is challenging me, testing me in ways I never imagined. Bringing out feelings I would not have believed I would have, and of course want to reject the negative ones! (Nothing violent or abusive or anything, but self-pitying, resentful, offended, shocked, hopeless, etc). When I stop and reflect, and pray about them, I often am led to understand where they are coming from. We are just human after all!

You are carrying a lot at an age that no one expects to be enduring such suffering. It hurts my heart to imagine all that you must endure. I’m glad you posted and I pray you will make encouraging connections here!