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Essential Thrombocytosis General Questions
Blood Cancers & Disorders | Last Active: Apr 4 1:29pm | Replies (36)Comment receiving replies
So question. Just for reference, I’m ET with jak2. My platelets are currently in the mid 500s, Taking a baby aspirin a day. No HU (it honestly scares me)
My fatigue however is seriously becoming life altering. It’s a full body weakness type fatigue. Is there ANYTHING I can do for myself to help alleviate it? I get monthly vitamin IV infusions as I’m a 20 years out bariatric patient so I don’t absorb supplements well. Any help or suggestions you have would be very helpful. I’m generally a very active person and just going to turn 60. This fatigue is really weighing on me. 😞
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@sdcgcarroll Patient Power offers tips, but a lot of their articles like this one just rehash common sense stuff like moderate exercise, prioritizing, decent sleep, stress reduction, and diet:
https://www.patientpower.info/myeloproliferative-neoplasms/living-with-myeloloproliferative-neoplasms/im-exhausted-10-tips-for-coping-with-mpn-fatigue
HU helped my fatigue, but if you've taken that off the table, you might talk to your GP. A few younger ET patients I talked to some years back found Adderall helpful for fatigue.