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Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?
Blood Cancers & Disorders | Last Active: 3 days ago | Replies (46)Comment receiving replies
Life is keeping you hopping @dorothea58
You mention hereditary-familial ATTR and not the wild type . I read Mayo Clinic’s description of Hereditary ATTR Amyloidosis that I believe is the type you have:
..also called familial transthyretin amyloidosis. This inherited condition often affects the nerves, heart and kidneys. It most commonly happens with changes to the TTR protein made by your liver. This altered protein is passed down through families.
I am not sure how Hereditary type ATTR is different than Wild type. What type of symptoms do you have and how are you treating?
Replies to "Life is keeping you hopping @dorothea58 You mention hereditary-familial ATTR and not the wild type ...."
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@jlharsh Wildtype is different one way in that it comes out of nowhere. The treatment is different. I am being treated with Onpattro. I tried Amvuttra but my symptoms came roaring back. So I returned to the Onpattro. My symptoms include aggressive neuropathy. I was quickly losing the ability to walk. I'd lost the ability to hold a pen and write. With Onpattro I can do both again. I still have neuropathy but not nearly as severe.