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@ksue3 you say a risk score of 34 makes you continue the meds. Where does this come from. I have looked up risk scores online but If you answer that you have been diagnosed, they tell you they can’t give you a number. I’m 73, did lumpectomy, chemo and radiation. My doctor does tumor markers and while I understand there is a lot of discussion about their accuracy , it still adds to the picture. Mine have never returned to normal and twice now have bounced back to before treatment levels. So like you, whenever I have thoughts of stopping these meds, it makes me wonder if there’s something there that makes this test go up that will wreak havoc if I stop controlling it with the medications. Have currently been off exemestane for 10 days, already feel a little better. If it continues, I won’t go back on this drug as there isn’t quality of life there, but he will want me on letrozole which may take me back to where I was on Anastrazole. If there is another test/score etc that may help clarify the need for these meds, I would want to see that number.
Replies to "@ksue3 you say a risk score of 34 makes you continue the meds. Where does this..."
@mistymar I was referring to my ONCO score done on the tumor after surgery. That score of 34 is considered in the high range. That made chemo a recommendation, which I did at age 83. The tumor was labeled aggressive. So, those things make me try to continue the Exemestane. I am in bad shape with bone density and was prior to starting this cancer path. Various meds have been tried over many years, so I fear falling or just having a bone break. A couple of years ago it was discovered that my kidneys were throwing out calcium and so bones weren't absorbing it. My goodness, what next? There is longevity in my family so I am not ready to risk have a recurrence of breast cancer. Will be 86, but still active and productive. Wish the side effects would level off. I wonder if it ever does.
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@mistymar
Letrozole is standard protocol here, I read enough and know myself well enough, to keep away from Letrozole, because I have read enough. it is truly not for me. But also everyone is so different. But, started on Exemestane on Monday, time will tell. The test score they are talking about is Oncotype Score, I might have spelled the score type wrong but it's close. Mine was 27, hormone blockers are made to block your body from making to much estrogen.
What do you mean that your hasn't returned to normal? Please explain?