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@hraka13 , thank you Carmen for your message! Nice to meet you. It is unfortunate that we need to take upon ourselves to find a way to cope with this condition . It is frustrating that even speaking to our doctors that suppose to be helping us act and think that it is all in our head. Nobody can really understand how we feel until they are in our situation. Which sometimes i wish they could feel it so that they can experience how hard it is to live with this pain.

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Replies to "@hraka13 , thank you Carmen for your message! Nice to meet you. It is unfortunate that..."

@bevcalvil, we often have to be our best - and sometimes only- advocates. Another “problem” with fibromyalgia is that not everyone has the same symptoms or level of them. It could be that I’ve had it so long but I tend to “ignore” much of what other people find debilitating. Things like the constant pain or discomfort or being tired a lot. My best friend was diagnosed much more presently and it has kicked her a**. Me, however, I’ve dearly with it for decades and for almost have that time I self medicated. That’s how I know that pain killers and other mind and mood altering drugs bring relief, but they have their own problems for this addict in recovery. It’s a trade off. I deal with what I can and the rest is gonna happen whether I accept it or not.

@bevcalvil my doctor never speaks of it , she told me to do whatever Mayo clinic says , it's sad but fine with me as I feel Mayo is the best