Studies on Covid 19 vaccine causing PMR

Posted by bruce7501 @bruce7501, Mar 30 10:12am

Anyone familiar with ongoing studies on the COVID-19 vaccine as a possible cause of PMR?
I understand there are such studies.
Since one possible cause of PMR is believed to be a viral infection, could you trigger one by getting a vaccination? The many vaccine skeptics certainly warned us about possibilities like this.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

My PMR symptoms began 15 months after my partner had open heart surgery, and 4 months after he contacted a rare mycobacteruim localized in his right hand soft tissues requiring 3 hand surgeries. I am pretty well convinced the stress f it all sparked my PMR. Plus my genetic predisposition. I already had 2 other rheumatic diseases, Raynauds and Graves and they run on both sides of my family.
As for vaccines, I'll be at the door everytime one is available. I believe in science and know the benefits.

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I am am a retired nurse. I've given this whole idea of covid vaccine causing autoimmune issues since diagnosed with PMR a year ago. I had every covid vaccine and booster you could get because I was working during the pandemic. My PMR diagnosis came on a couple years after receiving the vaccinations. However, I had two other autoimmune conditions in the past 30 years. As well, as far as I can tell I never had covid despite being in close contact with many who did... I'm just not sure what to think. Sometimes I wonder if the vaccine was just the trigger that pulled the already loaded gun? Since I will probably never know I'm just concentrating on getting well at this point. I appreciate all the thoughtful conversations.

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Profile picture for Elizabeth R @elizabethannr

@kjoed53 I agree, our daughter had a cardiac arrest and now is in a care facility with permanent brain damage. We are in our 80s and this has been devastating. When I first went to see my rheumy the first thing he asked me was whether I'd been experiencing any stressful events prior to the onset. So the experts must be thinking about this as well. He did admit also that thus far no one has figured out where the PMR comes from.

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@elizabethannr
Your stress factor must be extremely high. I'm sorry that you are going through that. There's so much unknown about PMR and not everyone has the same symptoms or the same results.

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No vaccine for me but did get COVID. It could have been the (man made spike protein ) virus itself which attacked my immune system, weakened it and set me up for getting PMR!
I think that those kind of studies would be more valuable!
All this biological warfare should be banned!

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Profile picture for gigilea @gigilea

I think we should be cautious when attributing vaccines as a cause for PMR. There's lots of variables that can contribute to autoimmune conditions. One big one is an aging immune system. Other risk factors for PMR are genetics (people from Northern Europe decent), being female, and age as already mentioned. My rheumatologist asked me if anything in particular that was stressful happened prior to my diagnosis of PMR. There were some family difficulties, death of a beloved pet and or course the state of the world right now. I'm not saying it couldn't happen, but we just don't know it vaccines play a part in PMR.

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@gigilea I can trace my problems back to a vaccination. I do not believe that the vaccine was what "caused" the events that lead to my PMR Dx, however I do believe that the vaccine triggered the events that led to PMR. What I am saying is that my immune system was depressed due to multiple rounds of a Medrol Dose Pack of steroids for TMJ. The steroids depressed my immune system, the vaccine was injected and it's mode of operation is to super charge the immune system. This triggered a chain reaction that caused me to have a severe adverse reaction including a pericardial effusion, anemia and other significant problems. It was a year before PMR was identified. So, in the most general way I can "blame" a vaccination.
I chose to believe in vaccinations and now am very careful about my general health before I get any vaccination. All vaccinations super charge your immune system. I now understand that the process stresses the immune system and it is more the stress than the vaccine that contributes to the PMR flare. I do not believe in taking two vaccinations in the same day. I will take them 2-3 weeks apart, never together.

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Profile picture for Elizabeth R @elizabethannr

My neighbor is a nurse with the VA. When I told him last fall I was considering not getting any more Covid shots, he asked me how many I'd had thus far. I said I thought maybe 4. He said, don't get any more. He said in about 10 years there's going to be a major study come out that will report devastating news about the vaccine. His words, "It's going to be bad."

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@elizabethannr
In my opinion, if someone did know that particular study results will be coming out in 10 years it's because they know that the results will be manipulated to prove a predetermined result. We live in the age of misinformation and disinformation in a world full of influencers and wannabes.

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Profile picture for kjoed53 @kjoed53

@gigilea
My wife swears that a certain stressful event that I experienced involving our daughter caused my full blown PMR symptoms

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@kjoed53
Keep in mind, it is a Well KNOWN FACT that the cause/ source of PMR is NOT really KNOWN. I’ve read it on this blog for 1.5 yrs now. So our arm chair quarter backing might be just as suspect. Many drs say the cause is a mystery.

In my humble opinion. Stress from our lives, our personal medical issues, etc. all can contribute to PMR. How many of us, have no other health or personal issues? When Covid hit, who wasn’t stressed out? Let’s not forget how frightening and stressful PMR is when we have it, and that’s after a usually long journey to diagnosis.

I was a 78 yo heathy active woman with healthy diet, no other issues , had a bad bike accident. It was terrifying, could barely move……stress of course over it, followed by the endless journey to diagnosis. 99% sure it was my cause.

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Profile picture for tweetypie13 @tweetypie13

@kjoed53
Keep in mind, it is a Well KNOWN FACT that the cause/ source of PMR is NOT really KNOWN. I’ve read it on this blog for 1.5 yrs now. So our arm chair quarter backing might be just as suspect. Many drs say the cause is a mystery.

In my humble opinion. Stress from our lives, our personal medical issues, etc. all can contribute to PMR. How many of us, have no other health or personal issues? When Covid hit, who wasn’t stressed out? Let’s not forget how frightening and stressful PMR is when we have it, and that’s after a usually long journey to diagnosis.

I was a 78 yo heathy active woman with healthy diet, no other issues , had a bad bike accident. It was terrifying, could barely move……stress of course over it, followed by the endless journey to diagnosis. 99% sure it was my cause.

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@tweetypie13
Our immune system is a highly complex system that seems to be susceptible to the occasional short circuit, the cause of which is attributed to many different factors. Stress, and our body's reaction to it is probably a contributing factor to more health issues than anyone is willing to accept. There's a psychological impact on our health that is difficult to fully ascertain, but the fact that our state of mind can have either a positive or negative effect on our health is not really debatable. I believe that it's even possible that if we believe something is a detriment to our health that we can actually make it so. That being said, sometimes it can be nearly impossible to keep a positive outlook when we're constantly in pain.

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Profile picture for Elizabeth R @elizabethannr

My neighbor is a nurse with the VA. When I told him last fall I was considering not getting any more Covid shots, he asked me how many I'd had thus far. I said I thought maybe 4. He said, don't get any more. He said in about 10 years there's going to be a major study come out that will report devastating news about the vaccine. His words, "It's going to be bad."

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@elizabethannr Is this a registered clinical trial by NIH. If so, I can look it up to see why it takes ten years to get an answer. I can't think of any clinical studies that take ten years to get an answer. Please give us more information about the clinical trial.

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