@crraining After 3 years now, I am still asymptomatic despite IgM going as high as 2200. Last test, was down to 1700, but I am now boarderline anemic. My plan is to get a second opinion from an IWMF recommended Dr with double wild-type experience when the time comes. I may start shopping around soon, just to have somebody lined up.
Please let me know what you end up doing. You are the first double WT I've heard from.