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Anyone with Anti-Mag tried Rituximab treatment
Autoimmune Diseases | Last Active: Apr 2 9:05pm | Replies (27)Comment receiving replies
@laporta
Have you had Myelin-Associated Glycoprotein (MAG) Antibody, IgM test theoretically if retuximab is working the titers should be dropping?
Also does insurance cover the retuximab, since this is an off label use I was told it would not.
Glad you're seeing improvements, hope it continues.
Replies to "@laporta Have you had Myelin-Associated Glycoprotein (MAG) Antibody, IgM test theoretically if retuximab is working the..."
@jeffls I will inquire about the titer testing. Thanks.
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@jeffls Thanks. I appreciate the kind thoughts. Yes, I have Anti-MAG. I should have stated that initially rather than assuming. At first, Kaiser thought it was peripheral neuropathy based on the initial symptoms. Then, they thought it was CIPD based on the EMG test response. Then, they did blood tests with a special lab in St. Louis to find out it is Anti-MAG. Yes, my Rituximab is being paid for through Kaiser. I am scheduled to have more tests done in May. I have two great neurologists and a P.T. person at Kaiser.