Hello
I am just starting phlebotomy treatment this week for Hereditary Hemochromatosis (with the HFE gene). My Ferritin is 500. I also have Thrombocythemia (high platelets/ Jak2) and I am taking Hydrea 500 mg daily for last 6 weeks. I'm curious how this will progress, as Hydrea is already reducing my blood counts (RBC, WBC, and HGB along with platelets) and the phlebotomy will (I think) do the same. Currently my HGB is good (13) and I understood I can have phlebotomies until it reaches 11. The plan is to have a phlebotomy every 3 weeks if the blood count numbers permit. The goal is to get Ferritin in the 50 - 100 range. Please share any insights or advice. I'm also curious how often you have phlebotomies, and how much does the Ferritin drop with each? Does it cause ongoing fatigue? thanks!