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Waldenstrom macroglobulinemia (WM): Deciding treatment options

Blood Cancers & Disorders | Last Active: May 12 3:53pm | Replies (72)
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Profile picture for crraining @crraining

@dcuste I am also the rare double wild type. What treatment has been recommended to you? My primary symptom is peripheral neuropathy.

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dcuste | @dcuste | Apr 1 6:05am

@crraining After 3 years now, I am still asymptomatic despite IgM going as high as 2200. Last test, was down to 1700, but I am now boarderline anemic. My plan is to get a second opinion from an IWMF recommended Dr with double wild-type experience when the time comes. I may start shopping around soon, just to have somebody lined up.
Please let me know what you end up doing. You are the first double WT I've heard from.

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