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Essential Thrombocytosis General Questions
Blood Cancers & Disorders | Last Active: Apr 4 1:29pm | Replies (36)Comment receiving replies
I'm really glad they're keeping a close eye on you . . . very sorry the blood draws are so difficult, though.
HU has helped me tremendously, but I have to take 6500 mg a week to keep my count 400/450ish. Thank goodness I tolerate it well.
As we were working towards an effective dose, my oncologist said the MPL variant is more challenging to get under control.
Our risk of blood clots is high too. Was your stroke caused by a clot? What a terrible way to find out you have ET.
Replies to "@kapow I'm really glad they're keeping a close eye on you . . . very sorry..."
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@janemc I take 1000 mg 5 days a week and 500mg on sat &sun. So I guess that is 6000mg a week …almost the same as you. And yes I had a “humongous “ blood clot in my carotid artery. (That was my vascular surgeon’s description. ) Things might have been much different if it had all broken free. But I had surgery to remove the clot and other than an extra “wrinkle” in my neck from the incision I am none the worse for wear.