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Anyone have Cutaneous T Cell Lymphoma?
Blood Cancers & Disorders | Last Active: Apr 10 8:08am | Replies (204)Comment receiving replies
Hi @penelopem. Welcome to Mayo Connect. You’re absolutely posting in the right discussion to share your experince having Cutaneous T Cell Lymphoma. Kudos to you pushing for answers by switching to another dermatologist in order to get the correct diagnosis! It’s important to advocate for your health when you’re suspecting something isn’t right.
Are the small tumors located near the same area where your original symptoms occurred? Wishing you a positive outcome with the radiation treatments. When will you start the treatment?
Replies to "Hi @penelopem. Welcome to Mayo Connect. You’re absolutely posting in the right discussion to share your..."
@loribmt Good morning Lori, I just wanted to give you an update. I received a call late yesterday afternoon to come today for the first radiation treatment at 4:00 this afternoon. I'll keep you updated.
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@loribmt
Hi Lori, thank you for the email. The tumors are not where the redness/rash originally started. However, they are where new areas had popped up on the inner area of my arch and ankle the past year. Some of the area looks very normal and haa healed, and the other area has the tumors. I'm waiting for a call from the radiation center to let me know when my radiation treatment will start.