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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Jul 18 8:22am | Replies (622)Comment receiving replies
I have ET with JAK2, 78 years old woman, diagnosed 3 months ago, Taking HU chemo.
My oncologist and neurologist want me to also take
Cymbalta generic for severe neuropathy pain. Anyone already taking it? The side effects look a bit scary.
Replies to "I have ET with JAK2, 78 years old woman, diagnosed 3 months ago, Taking HU chemo...."
@writernana Hi, I'm 64 and have ET with Jak2 and had alot of joint pain and developed neuropathy. I asked my doctor if I could use Hemp Oil as I am taking Hydroxycarbamide and a low dose aspirin. He said it would be fine. After 3 days taking the Hemp Oil I had no pain or neuropathy. I can sleep at night no burning pain or restless legs. My joints don't hurt and I am more active. I also do the Keto diet, which cuts out alot of sugar which can inflame the body. To experience no pain is life changing. I still get fatigued but living with no pain is magic. I realize not everyone can take Hemp oil but if it's approved by your doctor it is worth trying.
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Hi! Sorry to read about your neuropathy pain. I’m not certain if you’re asking questions about cymbalta or Hydrea. I was initially scared about the potential side effects of Hydrea. However, I’ve been taking it for 19 years and have had no problems once the doctor found out which dosage worked best for me. I started taking Hydrea at age 50 and I am now 69 years old. Best of luck to you!