Chronic Pain and Fibromyalgia - alternatives to medications?

Posted by Kelly, Alumna Mentor @kdubois, Jun 23, 2017

I'm wondering what methods other than medications fellow people here on Connect have used to relieve chronic body pain and pain from fibromyalgia.

As background, I cannot take most medications because I don't properly-metabolize them due to genetic polymorphisms; this includes all pain medications and medications used to treat fibromyalgia.

Therefore, some of my doctors have suggested the following. (Not all are possible for me though):
• Yoga
• Water exercises in swimming pool - my pharmacists and I are researching to see if I can tolerate chlorine and bromine.
• Hot tub
• Therapeutic massage
• Acupuncture - I started this in January and it has helped with the pain, but I feel as if I have plateaued. Luckily, my lady gives me a rate deduction because my insurance plan doesn't cover it.
• Tai Chi
• Walking in 30 minute intervals for at least 150 minutes each week.
• Balanced diet avoiding preservatives, emulsifiers, artificial sweeteners, and organically but eat from the local farmers market before buying organic at the grocery store

Any advice on what you have tried and your feedback is greatly appreciated!

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Rachel,
Thank you I saw the website but I don't know what to buy. I will try that ASAP and I agree with you that's probably one of the biggest problems specially after you've been on opioids. Thank you so much Jennifer

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I am enjoying reading about some of the alternative methods of pain relief. I was diagnosed with Fibro in Rochester ten years ago, failing all 18 pressure points. This year I was diagnosed with stage IV non small cell lung cancer that has metastasized in my abdomen and brain. They are so focused on my cancer that my pain is not even a point of discussion at most appointments. I am going to try some of the mentioned methods and see if they help. I am fatigued from both diseases, so I move less and I see the pain increasing.

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@lorinusbaum

I am enjoying reading about some of the alternative methods of pain relief. I was diagnosed with Fibro in Rochester ten years ago, failing all 18 pressure points. This year I was diagnosed with stage IV non small cell lung cancer that has metastasized in my abdomen and brain. They are so focused on my cancer that my pain is not even a point of discussion at most appointments. I am going to try some of the mentioned methods and see if they help. I am fatigued from both diseases, so I move less and I see the pain increasing.

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Your pain needs to be a point of discussion! Nobody with your diagnosis should be in pain!

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@irene5 @lorinusbaum @jenapower @kdubois

Earlier today you were corresponding with a newcomer to Connect. Investigation revealed that @rpoucher has a commercial affiliation with the product she claims to be using for various pain and heart health issues. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use https://connect.mayoclinic.org/terms-of-use/. Furthermore, these products have not been FDA approved.

For this reason, this user has been removed from the community and her posts deleted.

When considering complementary or alternative treatments, be open-minded yet skeptical. Learn about the potential benefits and risks. Here is an article from Mayo Clinic on evaluating claims made by the producers and/or sellers of supplements, natural products and other alternative medicines. http://mayocl.in/2tGC0Jp

Please let me know if you have any questions or concerns.

Colleen Young
Community Director, Mayo Clinic Connect

All information shared by members on the Mayo Clinic Connect, such as messages, images, advice, URLs, and any other material, is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community.

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@colleenyoung

@irene5 @lorinusbaum @jenapower @kdubois

Earlier today you were corresponding with a newcomer to Connect. Investigation revealed that @rpoucher has a commercial affiliation with the product she claims to be using for various pain and heart health issues. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use https://connect.mayoclinic.org/terms-of-use/. Furthermore, these products have not been FDA approved.

For this reason, this user has been removed from the community and her posts deleted.

When considering complementary or alternative treatments, be open-minded yet skeptical. Learn about the potential benefits and risks. Here is an article from Mayo Clinic on evaluating claims made by the producers and/or sellers of supplements, natural products and other alternative medicines. http://mayocl.in/2tGC0Jp

Please let me know if you have any questions or concerns.

Colleen Young
Community Director, Mayo Clinic Connect

All information shared by members on the Mayo Clinic Connect, such as messages, images, advice, URLs, and any other material, is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community.

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Oh dear! I was only hoping the lady with lung cancer and fibromyalgia would discuss medically prescribed pain medication with her physician/oncologist, because nobody that has cancer should have to have pain too. I would never advocate an alternative unless I had data or documentation to support it. I only know about legitimate forms of pain relief.
Even my vet warns me to be wary of "alternative treatments" for one of our dear GSD's who was just diagnosed with degenerative myelopathy. Thank you Colleen for always being alert.

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@sandytoes14

@kdubois Kelly,
The treatments you mention are now popular in healthcare as alternative but they are also complementary to medicine. It's good for folks like you who have genetic reasons which impede the benefit of medicine. And it's good for folks like me who want to limit the amount of medicine they take, Over the years I have done Massage, Acupuncture, water therapy, and dietary changes. I cannot twist and turn and balance with traditional Yoga so I try to remember Chair Yoga on YouTube .Each has its benefits and drawbacks.

-Water therapy is easy on the body but you need a timer to start slow. I can't tolerate cold water.
-Acupuncture helped me the most when I had no pain medicine (for neck pain) but did little for fibro. I like massage the best for fibro. My therapist can modify the pressure from one area of the body to the next.
- As far as dietary changes, I felt no difference physically in eating organic as far as fibro pain.

Over the years, I have not been able to walk as far or as fast as I could. Seven years ago, I was hiking to waterfalls and trails all over Oahu, Hawaii. Yes there was pain, but not like now. Today, I need to rely on how I feel before making a trip to the grocery store.
Doctors say fibromyalgia is not a progressive syndrome but I challenge that thinking.

Kelly, one thing you do not mention and I wonder if you have tried bio-feedback?

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@kdubois When I contact a new masseuse II ask if they are certified and if they are experienced with fibromyalgia or physical therapy. The web site http://www.NCBTMB.com can help you locate a certified therapist by zip code.

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@sandytoes14

@kdubois Kelly,
The treatments you mention are now popular in healthcare as alternative but they are also complementary to medicine. It's good for folks like you who have genetic reasons which impede the benefit of medicine. And it's good for folks like me who want to limit the amount of medicine they take, Over the years I have done Massage, Acupuncture, water therapy, and dietary changes. I cannot twist and turn and balance with traditional Yoga so I try to remember Chair Yoga on YouTube .Each has its benefits and drawbacks.

-Water therapy is easy on the body but you need a timer to start slow. I can't tolerate cold water.
-Acupuncture helped me the most when I had no pain medicine (for neck pain) but did little for fibro. I like massage the best for fibro. My therapist can modify the pressure from one area of the body to the next.
- As far as dietary changes, I felt no difference physically in eating organic as far as fibro pain.

Over the years, I have not been able to walk as far or as fast as I could. Seven years ago, I was hiking to waterfalls and trails all over Oahu, Hawaii. Yes there was pain, but not like now. Today, I need to rely on how I feel before making a trip to the grocery store.
Doctors say fibromyalgia is not a progressive syndrome but I challenge that thinking.

Kelly, one thing you do not mention and I wonder if you have tried bio-feedback?

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Thanks for the link. I found 3 in my area. I was a physiotherapist, so hope I won't be too hard to deal with!

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@colleenyoung

@irene5 @lorinusbaum @jenapower @kdubois

Earlier today you were corresponding with a newcomer to Connect. Investigation revealed that @rpoucher has a commercial affiliation with the product she claims to be using for various pain and heart health issues. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use https://connect.mayoclinic.org/terms-of-use/. Furthermore, these products have not been FDA approved.

For this reason, this user has been removed from the community and her posts deleted.

When considering complementary or alternative treatments, be open-minded yet skeptical. Learn about the potential benefits and risks. Here is an article from Mayo Clinic on evaluating claims made by the producers and/or sellers of supplements, natural products and other alternative medicines. http://mayocl.in/2tGC0Jp

Please let me know if you have any questions or concerns.

Colleen Young
Community Director, Mayo Clinic Connect

All information shared by members on the Mayo Clinic Connect, such as messages, images, advice, URLs, and any other material, is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community.

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@irene5, I believe I am the lady you were referring to 🙂 I have not yet gone into the pain discussion too far with my oncologist yet, because we are struggling to get my system to adjust to the daily targeted therapy I am on for my cancer. I have been taking Cymbalta and Trazadone for years for fibro, but the added stress on my nerves no longer seem to accept them as acceptable options. It was suggested in the cancer group I also belong to that I should talk to a cancer pain specialist, so that is on my list.

Thank you for your kind thoughts!

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@colleenyoung

@irene5 @lorinusbaum @jenapower @kdubois

Earlier today you were corresponding with a newcomer to Connect. Investigation revealed that @rpoucher has a commercial affiliation with the product she claims to be using for various pain and heart health issues. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use https://connect.mayoclinic.org/terms-of-use/. Furthermore, these products have not been FDA approved.

For this reason, this user has been removed from the community and her posts deleted.

When considering complementary or alternative treatments, be open-minded yet skeptical. Learn about the potential benefits and risks. Here is an article from Mayo Clinic on evaluating claims made by the producers and/or sellers of supplements, natural products and other alternative medicines. http://mayocl.in/2tGC0Jp

Please let me know if you have any questions or concerns.

Colleen Young
Community Director, Mayo Clinic Connect

All information shared by members on the Mayo Clinic Connect, such as messages, images, advice, URLs, and any other material, is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community.

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No problem. In 2017 no human being or animal should have to suffer with pain due to cancer. I have lost everyone in my family (parents and all except for my husband and children) due to cancer - Been there with each of them. My mom had a morphine patch which worked pretty well for her. She was also very stoic! You take care of yourself! 

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@colleenyoung

Great conversation to kick-off, @kdubois! I'm tagging other members who live with fibromyalgia to join the discussion @clownscrytoo @wandamiller @sandytoes14 @jenapower @robbinr @chari978 @irene5 @mchel46 @kayelle @bstephens @basslakeview @2122 @angieh @persist @jamesthee @michiganstressedlady @hmr52 @lucia: what non-drug therapies or activities help you relieve the symptoms and pain of fibro?

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Please add me to your email list. Thanks

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